johns hopkins prostate cancer second opinion

Urology. Where Should I Go for a Second Opinion? - breast cancer For these reasons and others, it is advantageous to seek more than one opinion about how your cancer can be treated. 7 Tips for Seeking Second Opinions For Men with Prostate Cancer Jonathan Epstein, M.D. And by FAA Aeromedical Ruling, I'd need a few post procedure reports before being cleared to fly again.) Best practices dictate that you obtain a second confirmatory pathology evaluation. Request an Appointment 410-955-6100 In addition to cancer, our urologic team provides second opinions regarding urinary stone disease, urinary tract reconstruction, incontinence, male infertility and sexual health, and many other urologic conditions or procedures. A small early-stage clinical trial found that a carefully selected group of patients who responded remarkably well to chemotherapy could skip surgery altogether. Expert review of your case by a Cleveland Clinic specialist. We provide second opinions on the full range of gynecologic cancers: Ovarian Uterine Cervical Vulvar Vaginal Fallopian tube Placental tumors Some peritoneal cancers In addition to providing a better understanding of your diagnosis, a second opinion can also shed new light on treatment options and give you confidence in how to proceed with your care. Netto says patients should be proactive in requesting that doctors take another look. * Size: 1.1 cm There is no extraprostatic extension. If a targeted biopsy is planned, this lesion can be sampled at the same time. OTHER: None. have no symptoms, and yet you have cancer? Even at the age of 48, he thought I would be a good candidate for AS. radiation, active surveillance, surgery, hormone therapy, and more. ---------------------------------------------------- Do I need a third opinion? However, that information will still be included in details such as numbers of replies. He said that he saw what JHs was referring to but did not determine EPE for a variety of reasons. And in some cases, the information you gain during a second opinion consultation can even change your diagnosis. I am doing my own research, but I am curious as to thoughts of the best possible MRI to obtain to give me the best chance at finding something the needle biopsy didnt find. Im immediately referred to Urologist. MRI RE-READ #3 (National Cancer Center of Excellence): 30%/40% or higher)? 2. Overall, nearly 80% of men received definitive treatment 76.5% of men who obtained a second opinion from a urologist received definitive treatment compared to 81.6% who did not . Hi JM "Numerous publications show the clinical and economic benefits of obtaining a second opinion for Pathology specimens. At the Breast Cancer Program at the Johns Hopkins Kimmel Cancer Center in Baltimore, MD, a second opinion requires only that you or your doctor send us your pathology slides, key medical records and signed paperwork requesting the opinion. All wanted to do what they do, schedule treatment which at this time is only Gleason 6 which I now know is not life threating. I followed up with the original pathologist to compare and he was more forthcoming. I was on active surveillance after a FLA procedure done in 2018. In other words, can I have a team here in Wisconsin yet travel elsewhere to get my MRI? My urologist suggested a couple more PSA tests followed by an MRI. 4/16 3T MRI performed (reports/re-reads below) Now Im still ignorant and dont really know a Gleason from a Duck, so when the Dr says your treatment is radiation or surgery Im devastated. Getting a second opinion on a diagnosis can reverse a diagnosis or alter the treatment plan. Inflammation of the prostate can affect the bladder and result in discomfort and other symptoms. * Size: 1.5 cm Our team approach brings together highly experienced prostate cancer experts from across disciplines to collaborate on each patients total care, from diagnosis through treatment and recovery. TRANSPERINEAL MRI GUIDED BIOPSY RESULTS I had the MRI in April 2021 and it showed a PI-RADS 4 lesion. With The Clinic by Cleveland Clinic, patients have access to Cleveland Clinics 3500 specialists. Prostate, left medial apex: A patient suffering from an enlargement of the prostate may have pain in his lower abdomen and genitals. Get a Second Opinion They may defer to the recommendation of the specialist, or refer you to a doctor with limited prostate cancer experience. According to the doctor it is around 3 mm. This is a PI-RADS 5 lesion in Following application of the relevant exclusion criteria, 2365 respondents remained in the analytical cohort. Dr. Nour is 100% sure that nothing has spread. When facing an intricate disease like prostate cancer, the above scenario is far too simple to have a promising outcome. I measure PSA frequently, and it is stable and slightly declining with the last score at 5.5. The problem is that all 3 pathologies noted an intraductal component. They agreed with the PI-RADS 4. Fear motivates you to want to treat this as soon as possible. Sometimes, you may find out about treatment options you didnt know were available. Careers. Prostate, right medial apex: Fear, confusion and uncertainty set in. A new study by researchers at the Johns Hopkins University has found that . Benign Processes: He adds that second opinions also can provide insight into topics like clinical genetics and family risk or issues related to complementary or integrative medicine approaches to manage symptoms. Am I missing anything? My experience at Johns Hopkins was awesome. and transmitted securely. We specialize in minimally invasive treatments for prostate cancer such as: We place a high priority on sparing the nerves and tissue around the prostate whenever possible. Last checkup (July 2022) my PSA was .46 and it is currently at .32.I am still eating primarily a plant based diet (only lean meats/cheeses/eggs about 10% of my diet) and maintaining steady weight and I am still quite active physically.As for symptomswith 5mg Daily Cialis the occasional ED symptoms have pretty much gone away. The symptoms of acute bacterial prostatitis are similar to those of CPPS. PSA was 3.0 in 2011 and rose to 6.0 in late 2013. The ADT has daunting side-effects but he said offers some improved chances of eradication, any long-term downsides that I should consider? This teamwork ensures the best possible patient outcomes. The more accurate the information we have, the better our treatment decisions. Of these, 40% obtained second opinions, most commonly because they wanted more information about their cancer (50.8%) and wanted to be seen by the best doctor (46.3%). Ask your doctor for a copy of your complete medical record. No one at Hopkins has ever died of prostate cancer if he had Gleason 3 + 3 cancer." ORIGINAL MRI REPORT (local radiology group): Research was mixed on PINS, but in those days, many doctors saw them as likely to develop into cancer. Also, their protocol would be another biopsy, but he was comfortable with the image and velocity of PSA that he didn't have to have one to start treatmentand I was pretty hesitant (given the image and PSA) to take ADT, and didn't see a biopsy changing my mind regarding treatment and/or ADT.Oh. Second Opinion Results, Johns Hopkins biopsy reading of 2 slides sent by Sloan: Y'all are in my prayers! First 6 week PSA is undetectable. The study included nearly 2,400 men in the Philadelphia area recently diagnosed with localized prostate cancer. He said that JHs said that it was 2 cores, but it was actually a fragmented core, that the fat did not present on the right place on the slide, that prior FLA (partial hemi-ablation) could affect the results, the MRI did not support, etc. Eager to hear what everyone thinks or has anything they see in the report I wouldn't have thought of. It is OK to not understand all the terminology. Note respondents were able to, MeSH I had two no-risk, non-invasive tests: a Free PSA with an adverse score of 9% and a PCA3 test with a disappointing 41. Research was mixed on PINS, but in those days, many doctors saw them as likely to develop into cancer. Studies show the clinical and financial benefits of obtaining a pathology second opinion. Radiation oncologist of same group of doctors says to do IMRT (using Rapid ARC program) as precautionary treatment, regardless of PSA scores. Slight BPH findings. After all, it seems like good idea to deal with your cancer sooner rather than later. The purpose of starting this discussion is to gather peoples thoughts and opinions and actual experiences with Prostate Focal Laser Ablation. Call us with any questions: 410-955-2405, ext. Because physicians may differ in their approach to treating breast cancer, its very important to check with a breast cancer expert to know youre receiving the best treatment for you. Forty percent of the men obtained a second opinion from urologists, most often because they wanted more information about their cancer or wanted to be seen by the best doctor . The people were great. Even if someone is being seen at a different academic center, the trials and other treatment options that we offer here may be different. Details are here: Anything I am overlooking or need to add to my list of considerations? Everything seems to be on track to remove the cancer and be cured! Men often seek second opinions from urologists before they initiate treatment for their newly diagnosed prostate cancer. This has only low-level nonspecific activity with SUV max of 2.05 and may be due to degenerative changes at the symphysis pubis." And when I attempt to ask questions about intradcutal, I get responses about how little is known about it because it's so rare or that it is controversial or that they're not familiar with the study I'm referencing. My PSA over time has been creeping up over time (1.8 - 5/16, 1.0 8/17, 2.68 8/18, 2.9 12/18, 3.28 2/19, 3.01 8/19, 3.65 2/20, 3.31 6/20, 3.88 12/20) but I was frankly a bit shocked when I received word that I have cancer. Prostatic Adenocarcinoma prostate cancer; quality of health care; second opinion; specialists; treatment. A enlarged prostate can also cause blockages in the urethra. A. Prostate, right base, core biopsy: In the mean time my PSA was movingno longer static, but never back up to 6. Confirm biopsy and imaging results with centers of excellence before making any final decisions. 3. Specimens Submitted: Prurigo Nodularis Cancer: What's the Link? - Verywell Health 7 in 10 PATIENTS WHO GET A SECOND OPINION AT CTCA CHOOSE TO TREAT WITH US Call now to find out why: 800.888.8888 Rosie P. Colorectal Cancer I worked out every day. A second opinion is part of the education process that is critical for many cancer patients. PROSTATE LESIONS: official website and that any information you provide is encrypted Also, if any of you have a way to get medicare to pay some portion of the cost, please let me know as well. Ozzieville (Michael), Hello All and thanks for being here~This is my first post.My husband was diagnosed with PC (adenocarcinoma with Extensive Intraductal Carcinoma Present) a few weeks ago. By basing a treatment However, just to be safe she schedules me for TRUS biopsy with the Urologist in another 6 weeks. Every year I got a PSA and DRE during my annual physical. * PIRADS v2 Score: 3 Am I wrong? Also, in 2018 I had an exosome Dx test which scored 45.34, but I also retook that test this year and it went down to 30.79. Comments appreciated, I also changed my diet to plant based food, started juicing, and started taking supplements (think Turmeric, Green Tea, etc.). Doctors are skilled at pitching the treatment they specialize in. Bring All Labs/Notes to Each Appointment. My plan is to choose quality of treatment over cost of the treatment. Usually, patients obtain a second opinion after being referred to a second physician or to a special team of experts in a cancer center, called a multidisciplinary team. Confused about Pathology report and course of action, Phone Number for John's Hopkins Radioogy Second Opinion. Secondary Gleason grade: 3 An accurate diagnosis is essential to ensure the most effective treatment. And thanks again for making this such a great support group! -------------------------------------------------------- We specialize in minimally invasive treatments for prostate cancer such as: We place a high priority on sparing the nerves and tissue around the prostate whenever possible. The best protection for cancer patients who are Health Maintenance Organization members is to seek a second opinion even if she or he has to pay for it. I have seen numerous urologist for their opinion and all of them want to cut and radiate and give me hormones. Just got my pathology results. Low post-void residual volume is My long-term prognosis appears to be good with minimal side effects. Cancer ABCs recommends: Johns Hopkins Hospital in Baltimore, Maryland, specifically Dr. Jonathan Epstein. Value of Second Opinion in Prostate Cancer Uncertain, Says - AJMC Whether you want expert confirmation, lack understanding or confidence in your treatment plan, have a rare or unusual type of cancer, your cancer isnt responding to current treatment its reassuring to know that you have options through a second opinion. This is the most common urinary tract problem in men under 50, and the third most common in men over 65. - T2 = 3/5 Surgeon wants next PSA in 3 months. Are there urologists out there that don't routinely order the DX test to get a better idea of low and intermediate risk cancers? My strong preference would be to do FLA again and monitor. Anyway, I'm reaching out to this group to see if anyone would be willing to chat with me about their brachytherapy experience at UCLA (even to talk me out of it). I am doing one in 6 weeks, regardless. At the Johns Hopkins Medical Institutions, he is Professor of Pathology, Urology, and Oncology the recipient of the Reinhard Chair of Urological Pathology and Director of Surgical Pathology.

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